Published on March 15, 2016
Dr. Charles Craddock of the Queen Elizabeth Hospital in Birmingham, UK, talks about how patients can obtain more information on their disease, by referring to booklets and printed documents, or health websites. Patients should also talk to their doctor and specialist nurse to fully understand the treatment options available and what those options entail.
Recorded at the American Society of Hematology (ASH) 2015 Annual Meeting in Orlando, FL.
This programme has been supported by Pfizer, through an unrestricted educational grant to the Patient Empowerment Foundation
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Part of the challenge about this for patients is that is a lot of news, often very difficult news, that’s given quite quickly. So one of the challenges is to really understand the nature of the disease and the implications and the treatment options, and so that’s why having printed information, and there are some very good booklets available which would routinely be given to patients, and also there’s some information on reliable websites on the internet. So I think the priority, really then would be to make sure that patients have the information they want and that they mentally prepare for what their diagnosis is and what the treatment is. And that almost inevitably will mean asking questions of the healthcare team.
In many patients with acute myeloid leukaemia one moves to treatment quite quickly, and so that would be admission to hospital, or the institution, if you are an inpatient, of treatment within 24 hours. So in that setting I think it’s more, really, about understanding what’s going on and having the support of your friends and family. There are longer-term issues about what you can do to help look after yourself during that hospitalisation, and then how you prepare yourself for subsequent treatment.