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How Can AML Patients Find Support Groups?

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Published on June 10, 2019

What kind of resources for acute myeloid leukemia (AML) support are offered in your community? How can AML patients connect with a support group? Listen in as Michelle Rajotte, fromThe Leukemia & Lymphoma Society (LLS), discusses different avenues to find the support you’re looking for.

This is a Patient Empowerment Network program produced by Patient Power in partnership with The Leukemia & Lymphoma Society. We thank Celgene Corporation, Daiichi Sankyo, Genentech, Helsinn and Novartis for their support. These organizations have no editorial control. It is produced solely by Patient Power.

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Transcript | How Can AML Patients Find Support Groups?

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That's how you’ll get care that's most appropriate for you.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Beth Probert:               

We have one last question from Doug from Boise, and, Michelle, I'm going to direct this question to you. Doug says, he doesn’t know how to find a support group. So, where does he start? Could you give us some feedback?

Michelle Rajotte:  
Sure. He can start by calling us. We can try to find out if there's one locally for him. There's also access to the online chat, which meets in the evening and he can talk with people that way. There's a lot of different options. So, there's the traditional support groups that you go to, but there are other ways of getting support, as well. So, that's a good way to start. It can be very overwhelming to try to find one. The other thing you can do is if you're being treated at a hospital, talk with the hospital social worker because they're usually pretty knowledgeable about what supports are in the area. But I would say those would be the two good places to start. 

Beth Probert:               

That’s wonderful. And Michelle, can you give us your specific phone number and email where people can reach you and your department?    

Michelle Rajotte:        

Sure. So, the number to the Information Resource Center, we're available Monday through Friday, 9:00 a.m. to 9:00 p.m. is 1-800-955-4572. The other way to access us is through the website, which is LLS, short for Leukemia & Lymphoma Society, much easier to type .org. When you get on there, there's a way to reach the information resource center either by email, by chat, or the phone number will be there, as well, if you need it. But that's really the best way to reach us. 

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.