Host and Patient Advocate, living with myeloma since 1995; Board member, Patient Empowerment Network
Jack Aiello of San Jose, Calif. is a leading patient advocate in multiple myeloma. In January of 1995 Jack had a terrible backache. He was diagnosed with multiple myeloma through a blood test. Since that time Jack has had stem cell transplants and clinical trials that have brought him to remission, even if only for a short time. However, ultimately he had a full allogenic (donor stem cells) transplant, resulting in a long-term remission. While he has long-term side effects, Jack's spirit remains high and to quote him "I certainly don't want anyone to feel bad for me. I consider myself extremely fortunate to be alive…have seen two daughters graduate with Master's and Bachelor's degrees, and my youngest son graduate from UCLA in 2006 in music education. One daughter does breast cancer research, another trained dolphins for many years before moving to the insurance industry, and my son teaches high school music. And now I’m a proud grandpa to four grandkids!” Jack is very much involved with cancer advocacy organizations such as the International Myeloma Foundation, Multiple Myeloma Research Foundation, The Leukemia & Lymphoma Society (LLS) and Myeloma Crowd, all of which provide research dollars and education programs for multiple myeloma. He also serves (served) on myeloma committees which focus on developing clinical trials, offering his patient perspective to the National Cancer Institute, SWOG Cancer Research Institute, BMT Clinical Trials Network, and Stanford’s Scientific Review Committee.