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Joseph Schiro

Joseph Schiro

Lymphoplasmacytic Lymphoma Patient

Misdiagnosed with CLL in 2012. Remained in watch and wait until 2014 when I became sick, oncologist strongly recommended the go-to CLL chemotherapy. Something told me to get a second opinion, so I found the CLL specialist Dr. Clive Zent at the Wilmot Cancer Center in the U of R in Rochester NY. After a complete exam, slew of bloodwork and a bone marrow biopsy, I was diagnosed with an extremely rare subset of a rare non- Hodgkins Lymphoma called Lymphoplasmacytic Lymphoma (LPL), very similar to Waldenstroms Macroglobulenemia. I started on a BTK Inhibutor (Immunotherapy) called Ibrutinub. Once stable, I maintained great numbers with some side effects. Most side effects were manageable except the mouth sores and Thrush. After extensive research, I decided to seek a newer BTK Inhibitor called Zanubrutinib (Brukinsa) and better care from advice of a friend, and ended up at Roswell Cancer Institute in Buffalo NY. I have been on Zanubrutinib for about three months now and doing good so far. I still have some side effects, however no horrible mouth sores or Thrush. I go see my local oncologist Dr Rahul Seth of the Upstate Cancer Center of Syracuse’s satellite office located in the Oswego NY Hospital for a follow up and results of a large amount of bloodwork that he ordered. I remain positive about my future. 

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