Specialties: Myeloproliferative Neoplasms
Maryann Gray is a self-proclaimed oddball in the MPN community since her MPN has progressed very slowly over the past 30 years, which is typical for patients with the CALR mutation. Initially, she was diagnosed with ET (essential thrombocythemia) and was treated with hydroxyurea (Hydrea). About 15 years ago, her doctor noticed that her platelet count was dropping and told her ET has progressed to MF (myelofibrosis). After a long period of “watchful waiting”, she began ruxolitinib (Jakafi) about three years ago and also receives bi-weekly darbepoetin alfa (Aranesp) shots. Her biggest side effect is fatigue and she does light workouts several times a week along with walking her dog daily to help manage it. She is a social psychologist and most recently served as assistant provost at UCLA.