Skip to Navigation Skip to Search Skip to Content
Search All Centers
Sue Waite

Sue Waite

MPN Patient and Advocate

Sue Waite was diagnosed with myelofibrosis (MF) in April 2012 at 42 years old. She went to her general practitioner because she was feeling very tired and like something was just wrong. The doctor felt her enlarged spleen and saw teardrop cells in her labs so he sent her to a hematologist oncologist. That oncologist then sent her to MPN specialist, Dr. Aaron Gerdes from the Cleveland Clinic, who confirmed she had MF through a bone marrow biopsy. She started ruxolitinib (Jakafi) very soon after and then was enrolled in the study GS-6624 – which uses simtuzumab (GS-6624) on bone marrow fibrosis either alone or in combination with ruxolitinib. That study ended unsuccessfully after about 18 months. About three years ago, she started needing transfusions because her counts were low, constantly tired, sleeplessness and a constant whooshing noise in her ears. Because she was anemic, she was put on an epogen shot (This shot stimulates the bone marrow to produce red blood cells) and her counts have stabilized since. Her energy has returned and her spleen has shrunk significantly. Now in her 7thyear of living with MF, she is doing very well on the shot and Jakafi. She enjoys traveling (she just got back from a trip to the Dominican Republic) and spending time with her three adults sons and husband. 

Programs Featuring Sue Waite (2)