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How I Advocate for Breast Cancer Patients

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Published on October 2, 2017

Joanne Taylor (@abcdiagnosis) was diagnosed with breast cancer in 2007 and then with secondary cancer—metastic breast cancer—in 2014. She is a strong advocate working for patient rights and to speed up research. Jo explains how her work online to empower breast cancer patients and to represent the patient voice.

This interview was recorded at the European Society of Medical Oncology (ESMO) congress held in Madrid (September 2017). Breast cancer videos recorded at ESMO 17 are part of an educational program by the Patient Empowerment Foundation (PEF). We thank Roche for their support.

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Transcript | How I Advocate for Breast Cancer Patients

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Jo Taylor:

Four years ago, I created the Breast Cancer Diagnosis, and that is a platform for people to connect with me. I created it as a primary breast cancer patient. Now I have secondary breast cancer, so it was for all breast cancer patients. And we connect through various ways and social media so via Twitter and via Facebook as well. I have a Facebook page, and there’s lots of information on the website for patients.

And it’s really a website built for patients by a patient. And I think that’s the difference that I wanted to do, because in England like in a lot of different countries it’s just by charities or by other independent companies or people or even the health service that you get provided information. So I just wanted to provide something that was more of a patient voice for patients.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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