[ Englisch] Prostate Cancer Updates From ASCO 2019

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Topics include: Treatments

How can sharing your prostate cancer journey help drive treatment research forward? Prostate cancer expert Dr. Eli Van Allen, from Dana Farber Cancer Institute, shares the key takeaways for prostate cancer presented at the 2019 American Society of Clinical Oncology (ASCO) meeting and explains how the Metastatic Prostate Cancer Project is using patient-reported information to improve care.

Visit www.mpcproject.org for more. 

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Transcript

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Rebecca Seago-Coyle:

Hey, everyone. I'm Rebecca here at ASCO, and I'm here with Dr. Eli Van Allen from Dana?Farber.  He's part of the metastatic prostate project, and he's here telling us today about what he's doing at ASCO and how this information relates back to the lab.  Thanks for joining us.   

Dr. Van Allen:

Thanks for having me.  

Rebecca Seago?Coyle:

Yeah.  So tell us, you know, ASCO, the theme this year is caring for every patient, learning from every patient.  You're doing a big study for the metastatic prostate project, so can you tell us a little bit more how those two connect?  

Dr. Van Allen:

Sure. Absolutely.  So the metastatic prostate cancer project is a pretty unique initiative.  We're actually, instead of expecting patients to come to us to participate in research we're actually bringing the research project to the patient's doorstep.  They can go to mpcproject.org, click the Count Me In button, sign on, and we can actually bring research projects, have them participate, generate lots of data and learn from them to help us inform what we should be doing for patients like them.  

And if the theme of ASCO is really about how every patient is really going to help drive the solutions and how we understand what's going to change prostate cancer management, this is how they can actually participate and join that movement directly.  

Rebecca Seago?Coyle:

So when we're talking about every patient, that's a huge term.  So are you including some diversity and measures to include those—every patient in every corner of the US?   

Dr. Van Allen:

Absolutely. So because this project really is approachable for anyone with an Internet connection and a mailing address, we can really touch lives around the country, actually both in the US and in Canada. And in doing that we're hoping that we can actually capture really the diversity of the patient experience in prostate cancer and beyond, because we can actually go to the patients instead of, again, expecting them to come to us at our academic medical centers.  

And indeed, not only that, we're asking patients to provide to us patient?reported information, and that actually is not only helping us further understand the diversity but also really is helping guide the research questions we're trying to ask. So patients are starting to tell us things that are helping us realize that there are actually patterns of care and interesting things happening in the community that we otherwise would have been blinded to, and again that's a—if there ever was a patient?driven research project that's it.   

Rebecca Seago?Coyle:

Yeah.  I think what you're doing is really amazing. 

Dr. Van Allen:

Thank you. 

Rebecca Seago?Coyle:

I'm a breast cancer survivor myself.  

Dr. Van Allen:

Oh, wow.  

Rebecca Seago?Coyle:

And I actually lost my father to prostate cancer.  

Dr. Van Allen:

Sorry.  

Rebecca Seago?Coyle:

So the research that you're doing is really helping families like my own kind of understand, and actually families out there that are long?time prostate followers of Patient Power.  

Dr. Van Allen:

Well, thanks for sharing your story, and I think it's stories like those that are actually part of what patients can now provide in a way that helps guide research and frankly seems like something we could never pull off even a few years ago.  

Rebecca Seago?Coyle:

So as a prostate researcher here at ASCO, what are some of the key takeaways that our members can also learn from you?  

Dr. Van Allen:

I think there are some really exciting clinical trial results actually going to be presented at this meeting about different combinations of treatments that can happen at various stages in prostate cancer and how those treatments actually will help men do better with this disease.  

I think the biggest takeaway however is that we still don't know enough.  We still don't have the right drugs.  We still don't have the right combinations, and I think we're still frankly woefully underpowered in terms of just data to really even make those kinds of discoveries.  And that's I think where it comes back to sort of why mpcproject.org is something we're so excited about because that's a way to sort of hopefully make a quantum leap in being able to tap into this patient population and be able to learn in real time.  

Rebecca Seago?Coyle:

Is there anything else that you think that our community, prostate community would like to know about?  

Dr. Van Allen:

I think one thing that's been really inspiring at this meeting is seeing how much ASCO is starting to embrace the patient experience.  That's much more of a theme than perhaps in years past.  I think it's, one, very encouraging to hear that, and, two, very inspiring to us in our research labs to know that what we're doing directly impacts real life.  This isn't an abstract problem.  This is people fighting cancer, families fighting cancer, and I think anything that we can do to contribute to that really sort of brings more meaning to what we're trying to do.  

Rebecca Seago?Coyle:

That's amazing. And I think if there's anything that Patient Power can do as well to help that, we do share a lot of our prostate patient stories on our site, and just building that community I think is great. 

Dr. Van Allen:

Wonderful, yeah. And that's actually precisely why we're thrilled that Patient Power is an advocacy partner of mpcproject.org, because we're—researchers, we don't have the credibility in the community that you guys do, obviously, and if ever a project like this was to work it would require advocates and patients talking with each other about the way this disease is and how they can actually contribute to fight it.  

Rebecca Seago?Coyle:

Well, thank you so much for making time to talk with us.  You know, Rebecca Seago?Coyle always says, remember, knowledge can be the best medicine, and I think in this case what we're partnering with the patients and the research that you're doing it really can provide the best medicine to our patients.  

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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Page last updated on August 20, 2019