Understanding MPNs: Accessing the Best Care & Treatment Options

A Town Meeting for Patients, Care Partners and Families

May 05, 2018

An audience of MPN patients and their caregivers joined us at a recent town meeting along with the University of Colorado Anschutz Medical Campus to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when important and inspiring videos become available and when upcoming town meetings are scheduled.


Patient Folder

Special thanks to our promotional partners, MPN Research Foundation, The Leukemia & Lymphoma Society (LLS), Canadian Myeloproliferative Neoplasm Network, PV Reporter, MPN Alliance Australia, MPN Advocacy & Education International and MPN Cancer Connection for their help with this program. The logos for each of these organizations, linked to their individual websites, can be found below.

Depression After MPN Diagnosis: What Are Strategies for Coping Emotionally?

The unique challenges patients face from an MPN diagnosis can trigger feelings of fear, anxiety and depression. How can MPN-related depression be treated? Watch now to learn more from a panel of experts.


How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

A 71-year-old MPN patient Nelson Patz was initially treated for Lyme disease and experienced painful, severe side effects but today he feels stronger than ever. How did he get to the care he needed? Watch now as he walks us through the twists and turns of his treatment journey.


Are Supplements Safe for MPN Patients?

Are supplements helpful or harmful to MPN patients? Can they interfere with treatment? Watch now to hear from a panel of experts the safest way for the body to absorb vital nutrients.


Cognitive Issues: Managing Common MPN Symptoms

Difficulty concentrating, fatigue, night sweats, blurred vision. Are these caused by MPNs? Watch now to hear a panel of experts explain MPN symptoms from “head to toe.”


Understanding the Physical and Emotional Impact of Diet in MPNs: An Expert Explains

What are the dos and don’ts of an MPN diet? Can healthy eating help the body tolerate treatment? Watch now to hear oncology dietician, Sommer Gaughan share diet and nutritional guidelines for patients.


Experts Explain: Tools for Determining Prognosis With Myelofibrosis

Many MPN patients want to know how their disease will change over time and what factors indicate progression. What risk assessment tools are used by the experts? Watch now to find out.


Regulating the Course of MPNs: What Are Inhibitors and How Do They Work?

Can modern MPN treatments disrupt the abnormal molecular signaling in cancerous cells? A panel of MPN experts discuss pathway inhibitors and their effect on proliferative activity and disease course. Watch now to learn more.


The Clinical Trial Process: An Explanation of How Efficacy and Patient Safety Are Monitored

A panel of experts explain the layers of review, or clinical trial phases, that go into the development of new therapies. How are MPN patients protected throughout the process? Watch now to also learn about safeguards in place before and during the study.


Understanding MPNs: Experts Explain Essential Thrombocythemia, Myelofibrosis and Polycythemia Vera

MPN experts, Lindsey Lyle and Dr. Brandon McMahon, explain how ET, MF and PV manifest in the body, distinguishing features of each disease, key indicators doctors look for upon diagnosis, and more. Watch now to learn about the characteristics of MPNs.


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Host & Guests

Host, Patient Power Co-Founder, Two-Time Cancer Survivor and MPN Patient Advocate


This town meeting was sponsored by Incyte Corporation. It was produced by Patient Power in partnership with the University of Colorado Anschutz Medical Campus.






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Page last updated on September 11, 2018