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What Do Newly Diagnosed Myeloma Patients Need to Know?

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Published on November 8, 2019

What do doctors want newly diagnosed multiple myeloma patients to know? Myeloma expert Dr. Noopur Raje from Massachusetts General Hospital shares three key guidelines to help patients get educated about their condition and seek out the best care. Watch as Dr. Raje explains how to prepare for what’s next, connect with supportive resources and choose a healthcare team with the expertise to treat myeloma.

This program is sponsored by Janssen Biotech, Inc. This organization has no editorial control, and Patient Power is solely responsible for the content. It is produced by Patient Power.

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Transcript |

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That's how you’ll get care that's most appropriate for you.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Dr. Raje:                    

I think when you’re first diagnosed with multiple myeloma, patients need to know that there are a lot of resources available to them because a new diagnosis, obviously, can be fairly overwhelming. So, number one, seek out the resources, which are available. Number two, really know that this is not something that a patient has to go along with by themselves. There is a whole team approach that most of us use, and that includes the patient, the patient’s caregivers, as well as the clinical team that the patient is connected with, which includes their physician, their nurse practitioners, their nurses that give them the chemotherapy, a social worker. So, it really should be about all of this. 

And really, in my mind, when you have a new diagnosis like myeloma, the more you do in terms of educating yourself is gonna be really critical because in my mind education is empowering. Understanding your disease is gonna help you cope with the disease better. And really, the more you understand the disease, the less concerned you’re gonna be about the unknowns. And to me, that’s really extremely important. 

The one thing I will say is multiple myeloma is not necessarily a very common cancer. So, when patients get diagnosed, they’ve probably never heard about multiple myeloma before. And I also think because there is so much going on in the multiple myeloma space in terms of treatments, new treatments, new targets, etcetera, it’s also nice for patients to connect with an expert in their area. And that’s part of the reason why really focusing on resources available to these patients is critical because these resources will put them in touch with the right experts within their area. 

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.