The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission is to cure leukemia, lymphoma, Hodgkin's disease myeloma and myeloproliferative neoplasms and to improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services, including financial support and talking to an information specialist.
The Multiple Myeloma Research Foundation (MMRF) seeks to find a cure for all multiple myeloma patients by relentlessly pursuing innovations that accelerate the development of precision treatments for cancer. Founded in 1998 by Kathy Giusti, a multiple myeloma patient, and her twin sister Karen Andrews as a 501(c)(3) nonprofit organization, the MMRF identifies barriers and then finds the solutions to overcome them, bringing in the best partners and aligning incentives in the industry to drive better outcomes for patients. Since its inception, the organization has collected thousands of samples and tissues, opened nearly 100 trials, helped bring 11 FDA-approved therapies to market, and built CoMMpass, the single largest genomic dataset for any cancer. Today, the MMRF is building on its legacy in genomics and is expanding into immune-oncology, as the combination of these two fields will be critical to making precision medicine possible for all patients.
The Myeloma Crowd site is the first all-inclusive site for myeloma patients and features all of the good being done in the world of myeloma from the various myeloma foundations, patient support groups, individuals and myeloma specialists. It was founded in 2010 by myeloma patient Jenny Ahlstrom and offers three areas of support: 1) online and live simplified education in patient-friendly language 2) support for leading edge research for high-risk patients and 3) the use of data to solve patient problems and support research.
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support and Advocacy.
The mission of The Myeloma Beacon is to improve the treatment, care, and support available to current and future multiple myeloma patients worldwide. To accomplish this mission, The Beacon has been online since 2008, providing independent and objective news and support to the multiple myeloma community. In the process, The Beacon has become one of the most trusted and widely read sources of myeloma-related research updates, patient perspectives, original physician contributions, and online discussion
SparkCures was founded by Brian McMahon, a four-time cancer caregiver after a myeloma clinical trial extended his mother’s life by two years. It helps myeloma patients find, understand and connect with their clinical trial options at centers around the United States. Patients or their care partners can sign up for free to get personalized clinical trial reports