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How Do MPN Patients Get Information?

Published on January 30, 2020

Key Takeaways

  • The MPN Patient Online Questionnaire was a first-of-its-kind survey that was turned into academic poster and presented at ASH 2019.
  • From the survey, Researchers found that patients mainly use Facebook and YouTube while physicians use Twitter.
  • You can participate in the survey here and see the findings shared at ASH here.
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Myeloproliferative neoplasms expert Dr. Naveen Pemmaraju, from The University of Texas MD Anderson Cancer Center, partnered with Patient Power to create a survey to find out how MPN patients are using online resources to guide their care. Watch as Dr. Pemmaraju shares results from the first-of-its-kind online survey, that were also turned into academic poster and presented at ASH 2019. The de-identified data was compiled into a poster and shared at ASH 2019 to help doctors understand gaps in these resources.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

 

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