The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission is to cure leukemia, lymphoma, Hodgkin's disease myeloma and myeloproliferative neoplasms and to improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services, including financial support and talking to an information specialist.
The primary mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments -- and eventually a cure -- for polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN). In addition, the MPN Research Foundation promotes collaboration in the scientific community to accelerate research, and serves as a powerful advocacy group for patients and their families.
The MPN Education Foundation is a 501(c)(3) non-profit organization run by volunteer MPN patients. It is focused in bringing education, information and support to MPN patients all over the world. This is achieved through MPN-NET, an un-moderated discussion list that addresses patient experiences, psychosocial issues, new research, clinical trials, current treatment practices and alternatives. They also provide educational videos about MPNs, newsletters, and they host biannual patient conferences in conjunction with the Mayo Clinic.
MPN Advocacy & Education International provides resources, quality education programs, advocacy support and services to patients with myelofibrosis, essential thrombocythemia and polycythemia vera, caregivers, physicians and all those in the MPN community. It is committed to assisting, directing and informing its constituents on pertinent issues that impact quality care, treatment accessibility, updates on current research, and updates on clinical trials.
PV Reporter was created in 2013 by PV patient, David Wallace to provide easy access to pertinent information on polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF). It has a custom search engine called “MPN Search” that indexes research data, reports, stories, and news items from some of the best reference sources in the MPN World.
MPN Cancer Connection is a 501(c)3 non-profit, whose mission is to continue helping MPN patients by expanding the wide range of resources available through PV Reporter & MPN-CC, empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a broad range of benefits and program assistance.