Patient Stories

A Young Adult Finds Friendship After an MPN Diagnosis

An MPN patient shares their journey of being diagnosed with blood cancer as a young adult and finding support.

My Journey With Primary Myelofibrosis

Hear MPN patient Ned Weinshenker share his primary myelofibrosis story, including his experience participating in a clinical trial during COVID-19.

Upcoming Events

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Sep 9 2021

Answers Now: Managing MPN Symptom Burden

Thursday, September 9, 2021

Time: 11:30 AM – 12:30 PM Pacific Time (US and Canada)

Join us on Thursday, September 9th, at 11:30 am PDT/2:30 pm EDT for an in-depth conversation about symptom burden.

Topic Area: Myeloproliferative Neoplasms

Type: Online

Time: 11:30 AM – 12:30 PM Pacific Time (US and Canada)

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Latest News

Participating in an MPN Clinical Trial During Coronavirus

Diagnosed with Myelofibrosis: Chris' Story

Andrew Schorr, Chris Frost

Patient Stories

A Young Adult Finds Friendship After an MPN Diagnosis

My Journey With Primary Myelofibrosis

Upcoming Events

Answers Now: Managing MPN Symptom Burden

Thursday, September 9, 2021

Latest News

Participating in an MPN Clinical Trial During Coronavirus

Diagnosed with Myelofibrosis: Chris' Story

Andrew Schorr, Chris Frost

Comic Book Artist Raises Awareness of MPNs Through Portraits

Megan Trusdell

MPN Patient Shares Clinical Trial and Transplant Story

Phil Arner

MPN Patients Share Stories of Hope and Progress

Ruth Fein, Karla and Josh Burdick, Andrew Schorr

MPN Story Part 3 At-Home Recovery and Self-Quarantine

Samantha Trahan

Lessons Over the Long Term With MPNs

Maryann Gray, PhD

MPN Story Part 2 The Hospital Stay

Samantha Trahan

How I Advocated for a Clinical Trial

Ned M. Weinshenker, PhD

MPN Patient Says, "Clinical Trials Kept Me Alive"

Ben Fuelberg, Jeanie Fuelberg, Andrew Schorr

MPN Story Part 1 Pre-Transplant Preparation

Samantha Trahan

MPN Patient Says There's an Explosion of Research

Andrew Schorr, Jill Rich

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