Patient Stories

Patient Stories

Getting a Myelofibrosis Diagnosis in My 40s

Have you or someone you know been diagnosed with a second cancer? Read Julia Olff's blog to learn how she dealt with a diagnosis of a second MPN condition.

Patient Stories

Woman With Myelofibrosis Gets Unapproved Drug With Help of Care Team

How can you advocate for yourself with a clinical trial drug if it’s later taken away? Watch as Sandra Dillon shares her story of her fedratinib trial.

Sandra Dillon, Esther Schorr

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Patient Stories

My MPN Journey: From I to We

Patient Stories

Returning to Normal

Patient Stories

How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

Nelson Patz, Brandon McMahon, MD, Andrew Schorr, Lindsey Lyle, MS, PA-C

Patient Stories

Andrea’s Story: The Fight to Live Well, Not Just Live Longer With Myelofibrosis

Andrea Spica, Beth Kart Probert

Patient Stories

Samantha’s MPN Story: Dealing With a Diagnosis in Your 20s and Beyond

Beth Kart Probert, Samantha Trahan

Patient Stories

Patient Café®: Coping With the Ups and Downs of Chronic Blood Cancer

Andrea Spica, Carol Preston

Patient Stories

Adjusting to Life With an MPN: What Happens After Diagnosis?

Beth Kart Probert, Erin H. Blackwell, RN, BSN, OCN, Laura C. Michaelis, MD

Patient Stories

Emotional Support: Why We Need It When Faced With Cancer

Patient Stories

MPN Patient Café: Hope for the Future

Andi Malitz, David Denny

Patient Stories

David’s MPN Story: Why I Choose to Stay Positive

David Denny, Esther Schorr

Patient Stories

Making the Choice to Undergo Stem Cell Transplant for Myelofibrosis: A Patient Story

Bo Collins, Moira Quinn

Patient Stories

An MPN Story: Planning for the Future 14 Years After Diagnosis

Margie ., Andrew Schorr

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