Patient Stories

Patient Stories

Getting a Myelofibrosis Diagnosis in My 40s

Have you or someone you know been diagnosed with a second cancer? Read Julia Olff's blog to learn how she dealt with a diagnosis of a second MPN condition.

Patient Stories

Woman With Myelofibrosis Gets Unapproved Drug With Help of Care Team

How can you advocate for yourself with a clinical trial drug if it’s later taken away? Watch as Sandra Dillon shares her story of her fedratinib trial.

Sandra Dillon, Esther Schorr

Upcoming Events

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May 2 2020

Saturday, May 2, 2020

Living With an MPN at Any Age

Join us online on Saturday, May 2nd to hear from MPN experts and patients.

Topic Area: Myeloproliferative Neoplasms

Type: Online

Time: 9:30 AM – 12:30 PM Pacific Time (US and Canada)

Latest News

Patient Stories

Part 2: The Hospital Stay

Samantha Trahan

Patient Stories

How I Advocated for a Clinical Trial

Ned M. Weinshenker, PhD

Patient Stories

MPN Patient Says, "Clinical Trials Kept Me Alive"

Ben Fuelberg, Jeanie Fuelberg, Andrew Schorr

Patient Stories

Part 1: Pre-Transplant Preparation

Samantha Trahan

Patient Stories

MPN Patient Says There's an Explosion of Research

Andrew Schorr, Jill Rich

Patient Stories

MPN Patient Shares Stem Cell Transplant Process

Samantha Trahan, Andrew Schorr, Andrew Schorr

Patient Stories

My MPN Journey: From I to We

Patient Stories

Returning to Normal

Patient Stories

How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

Nelson Patz, Brandon McMahon, MD, Andrew Schorr, Lindsey Lyle, MS, PA-C

Patient Stories

Andrea’s Story: The Fight to Live Well, Not Just Live Longer With Myelofibrosis

Andrea Spica, Beth Kart Probert

Patient Stories

Samantha’s MPN Story: Dealing With a Diagnosis in Your 20s and Beyond

Beth Kart Probert, Samantha Trahan

Patient Stories

Patient Café®: Coping With the Ups and Downs of Chronic Blood Cancer

Andrea Spica, Carol Preston