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Coronavirus Live Ask the Expert Webinars

Coronavirus Live Ask the Expert Webinars
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Published on March 30, 2020

You have coronavirus questions and we have the experts. The hottest topics and answers to the questions you send in. Please join us for our series of live webinars or view the replay or transcript. We welcome your questions and suggestions anytime at comments@patientpower.info.

 

Upcoming Webinars

 

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CLL Survivors Share their CAR-T Cell Experiences

Thursday 7/16/20 at 9:30 AM Pacific/ 12:30 PM Eastern
CAR-T Cell therapy is a potential treatment for people living with CLL. Even if you are unsure if CAR-T is right for you, it's a good idea to understand the latest information as well as pros and cons should you face that decision in the future.

Join us for our next CLL Answers Now program on Thursday July 16th at 9:30 am PT/11:30 am CT/12:30 pm ET as host Andrew Schorr talks to expert Dr. Nitin Jain from the University of Texas MD Anderson Cancer Center. They will be joined by patient advocates, David Garcia and Larry Saltzman who will share their own CAR-T cell experiences. The panel will also discuss if you can get CAR-T cell therapy during the COVID-19 pandemic.  Send your questions in advance to cll@patientpower.info.
 
Register Now

 

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Living With Hodgkin Lymphoma During the COVID-19 Pandemic

Friday 7/17/20 at 1:30 PM Pacific/ 4:30 PM Eastern
Does COVID-19 affect how hodgkin lymphoma patients are treated or monitored? Should people living with hodgkin lymphoma take special precautions and are they considered high-risk? How long are survivors considered immunocompromised? Join us for our Answers Now program on Friday July 17th at 1:30 pm PT/3:30 pm CT/4:30 pm ET.
 
Living with cancer during a pandemic brings extra questions and concerns. Host Ruth Fein talks to lymphoma expert Dr. Ian Flinn from Tennessee Oncology about living with hodgkin lymphoma during the coronavirus pandemic. A hodgkin lymphoma patient will also share their story and concerns. Send in your questions in advance to comments@patientpower.info.
 
Register Now

 

Past Webinars 

 

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Polycythemia Vera and Clotting: Does COVID-19 Make Me High Risk?

Are polycythemia vera (PV) patients at a higher risk during the coronavirus pandemic? Should they worry about clotting, strokes, or even hospital capacity to treat them?
 
Host Esther Schorr talked with two MPN experts, Dr. Angela Fleischman from UC Irvine and Dr. Joseph Scandura from Weill Cornell Medicine. They were joined by a PV advocate to share their experience and their concerns. 
 
This program is sponsored by Incyte. This organization has no editorial control. It is produced by Patient Power and Patient Power is solely responsible for the content.
 
VIDEO REPLAY & TRANSCRIPT COMING SOON

 

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Expert Advice on Managing Side Effects of Cancer Treatment

Cancer, along with the side effects from treatments, is a formidable foe. Palliative care is a means of managing fatigue, pain, nausea, sleeplessness and more. 

Often confused with hospice care, palliative care is finally receiving the attention it deserves. From mitigating side effects to improving overall quality of life, it has become an integral part of cancer care. Dr. Subbiah Ishwaria, a leading expert from the University of Texas MD Anderson Cancer Center, and patient advocate Stacey Tinianov, discussed the benefits of palliative care and explain how to incorporate it into your treatment plan.

Expert Advice on Managing Side Effects of Cancer Treatment

 

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Managing the Costs of CLL Treatment

CLL treatment can be expensive, particularly over time and when it's treated like a chronic condition. Is there a benefit to fixed duration therapy? Does it keep costs down? Are there financial resources available to help?

Host Andrew Schorr talked to CLL expert Dr. Thomas Kipps of UC San Diego Moores Cancer Center and Dr. Jennifer A. Woyach of The Ohio State University about where cost concerns come into play when making treatment decisions. They were joined by a patient advocate.

This program is sponsored by AbbVie, Inc. and Genentech, Inc.  These organizations have no editorial control. It is produced by Patient Power.  Patient Power is solely responsible for program content

Managing the Costs of CLL Treatment

 

A Cancer Patients Guide To Masks

 

A Cancer Patient's Guide To Masks

What types of masks are available and offer the best protection for cancer patients against COVID-19? Host Esther Schorr talked to advanced practice nurse Summer Krain, from the UAMS Myeloma Center, on what she is advising her patients to wear. They were joined by a patient advocate who shared their experience. 
 
A Cancer Patient's Guide To Masks

 

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Will COVID-19 Influence CLL Care Long Term?

The recent coronavirus pandemic temporarily disrupted plans for many, but will it shift the thinking of chronic lymphocytic leukemia (CLL) treatment forever? Host and 20+ year CLL patient Andrew Schorr talked to leading expert Dr. Nitin Jain from The University of Texas MD Anderson Cancer Center and Dr. Alexey Danilov from City of Hope along with another long-term CLL survivor.

Although this is a sponsored program, Patient Power maintains editorial control and is solely responsible for the content of this program.

Part 1: Has the Pandemic Changed CLL Treatment Approaches? Part 2: What CLL Patients on Watch and Wait Need to Know Right Now
Part 3: Clinical Trials Explore Use of BTK Inhibitors in COVID-19

 

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The Future of MPN Research After COVID-19

With the coronavirus pandemic, has research on myeloproliferative neoplasms (MPNs) halted? Are clinical trials still moving forward? For our latest Answers Now program, host and MPN patient Andrew Schorr talked to two MPN researchers, Dr. Naveen Pemmaraju of the University of Texas MD Anderson Cancer Center and Dr. Jeanne Palmer of the Mayo Clinic Arizona.

This program is sponsored by Sierra Oncology. This organization has no editorial control. It is produced by Patient Power in partnership with the MPN Research Foundation. Patient Power is solely responsible for the program content.

Part 1: MPN Patient Grateful for Research and Clinical Trials Part 2: Is MPN Research Still Moving Forward Despite COVID-19?
Part 3: New Drugs Advance MPN Treatment
Options
Part 4: MPN Experts Discuss Clinical Trials and Transplants

 

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An Honest Conversation About Masks and COVID-19

What should you say to others about why you're wearing a mask during this coronavirus pandemic?

Breast cancer survivor Greta Beekhuis was hassled in a store parking lot when she wore a mask to pick up her medicine. Greta shared her story and what she wishes she would have said that day. Lung cancer patient Gina Hollenbeck wore a mask to the gym and then posted a photo of herself on social media, along with her reasoning behind it. She shared her experience about backlash she received.

Social work program manager Harold Dean from UAMS Myeloma Center provided guidance for how, or if, to have those difficult conversations with family, friends, neighbors and people you encounter.

Part 1: Breast Cancer Patient Hassled For Wearing
Mask
Part 2: Lung Cancer Patient Criticized For Not Wearing Mask
Part 3: Masks Are a Health Issue, Not a Political One

 

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Latest Myeloma Treatment News From ASCO

Where can you put 50 years of myeloma patient wisdom to work for you so you or a loved one gets the best care? Where? On Patient Power’s Myeloma Answers Now program, FOUR very experienced patients/support leaders gave their perspectives on myeloma news from ASCO, the world’s largest cancer medical meeting. They explained and took questions on what you should talk to your doctor about.

Part 1: What Does the ENDURANCE Trial Mean for Myeloma Patients? Part 2: CAR T-Cell Clinical Trial Updates for Myeloma Patients
Part 3: What Does the StaMINA Trial Mean for Myeloma Patients?

 

Financial Answers Now

 

 

 

Is Financial Help Available If I Lost Income Due to COVID-19?

Navigating the costs of cancer care can be daunting enough but what if you have a change in income due to the coronavirus pandemic? That change in income can impact programs you might be enrolled in like Medicaid and Medicare along with co-pay assistance programs. Andrew Schorr led our Answers Now program as he talked to two leading financial navigators, Dan Sherman  and Aimee Hoch, on how to deal with these changes and resources that can help.

This program is sponsored by Incyte, Janssen and Pharmacyclics. These organizations have no editorial control, and Patient Power is solely responsible for program content.

 

Part 1: How Can I Find a Financial
Navigator
Part 2: Is Financial Help Available for Cancer Patients?
Part 3: Financial Assistance for Cancer Patients Part 4: Navigating the Costs of Cancer Care

 

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Should I Delay CLL Treatment Because of the Coronavirus Pandemic?

Should you delay CLL treatment because of the coronavirus? Whether this is your first treatment or if you need re-treatment after coming out of remission, this is an important question to get answered! What are the pros and cons of initiating or delaying treatment?

Host and CLL patient advocate Andrew Schorr got the answers from CLL experts Dr. Philip Thompson from the University of Texas MD Anderson Cancer Center and Dr. John Allan from Weill Cornell Medicine. CLL patient advocate Jeff Folloder also joined to share his patient perspective.

This program is sponsored by AbbVie, Inc. and Genentech, Inc. These organizations have no editorial control. It is produced by Patient Power.  Patient Power is solely responsible for program content.

Part 1: CLL Retreatment Amidst Coronavirus Part 2: Is CLL Care Finally Returning to Normal?
Part 3: CLL Clinical Trials and Treatment During
COVID-19
Part 4: Will a COVID-19 Vaccine Work for CLL Patients?

 

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COVID-19 Testing for MPN Patients

Myeloproliferative neoplasm patients want to know if they can get tested for COVID-19, if they can trust the test results and if their MPN affects the results. Host and MPN patient Andrew Schorr got the facts from MPN experts, Dr. Brady Stein from Lurie Cancer Center in Chicago and Dr. Ellen Ritchie from Weill Cornell in NYC. They were joined by MPN patient advocate and Dr. Ritchie's patient, Ruth Fein who shared her experience with COVID-19 symptoms.

This program is sponsored by Incyte. This organization has no editorial control. It is produced by Patient Power. Patient Power is solely responsible for program content.

Part 1: COVID-19 Testing for MPN Patients
Part 2: Latest COVID-19 Info for MPN Patients

 

 

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The Latest in Blood and Antibody Tests for COVID-19

We are learning more about antibody tests for COVID-19. Host Andrew Schorr led our follow-up session with noted laboratory science experts Susan Leclair, PhD, and Jim Griffith, PhD.

Part 1: What’s the Latest on Coronavirus Antibody Tests? Part 2: Your Coronavirus Test Questions Answered

 

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What's My Current Risk for Coronavirus?

What's the latest data on my risk of getting the coronavirus and the complications that could come from it as a CLL patient? Host Andrew Schorr spoke live with Dr. Matthew Davids from Dana-Farber Cancer Institute about his experience treating patients in Boston. They were joined by CLL patient advocate Michele Nadeem-Baker who shared her patient perspective.

Although this is a sponsored program, Patient Power maintains editorial control and is solely responsible for the content of this program.

Part 1: What’s My Current Risk for
Coronavirus?
Part 2: Does Living With CLL Increase My Risk for Coronavirus?

 

Cancer and COVID 19 When Will I Be Safe

Cancer and COVID-19, When Will I Be Safe?

Throughout the country, states are “opening up” amidst the coronavirus pandemic. What do cancer patients and other immunocompromised individuals need to know? Andrew Schorr talked to two experts from Sarah Cannon Research Institute at Tennessee Oncology.

Cancer and COVID-19, When Will I Be Safe?

 

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Making Sense of New Myeloma Treatments During Coronavirus

Amidst the coronavirus pandemic, new myeloma medicines are still being approved. How do patients and their doctors incorporate these new therapies during this time of telemedicine and adjusted treatment schedules? Dr. Saad Usmani from Levine Cancer Institute and leading patient advocate Jack Aiello joined us to discuss. 

This program is sponsored by Sanofi Genzyme. This organization has no editorial control. Patient Power is solely responsible for program content.

Making Sense of New Myeloma Treatments During Coronavirus

 

What Do MPN Patients Need to Know About COVID 19

 

What Do MPN Patients Need to Know About COVID-19?

We continue to learn what COVID-19 means for MPN patients from top experts. Two experts from leading centers, Dr. Raajit Rampal from Memorial Sloan Kettering in New York City, and Dr. Srdan Verstovsek from MD Anderson in Houston, answered audience questions and explained the latest research. Michelle Woehrle, from the MPN Research Foundation also joined with an update on resources that can help. 

What Do MPN Patients Need to Know About COVID-19?

 

Spirituality Mindfulness and Gratitude in the Time of the Coronavirus

Spirituality, Mindfulness and Gratitude

Two spiritual leaders - Rabbi Jill Zimmerman and Pastor Rodrick Echols - joined us to discuss how to tap into your individual version of spirituality, mindfulness and gratitude as we all face this trying time of the coronavirus pandemic.

Part 1: A Conversation About Spirituality, Strength and Community Part 2: Community and Gratitude in the Time of Coronavirus

 

Coping With Cancer As a Couple Amidst Coronavirus

Coping With Cancer As a Couple Amidst Coronavirus

Andrew and Esther Schorr and inspiring couple Mark Silverstein and Nelia Pacheco  joined us for a discussion centered around coping amid coronavirus. Two patients and their spouses compare strategies and took audience questions.

Coping With Cancer As a Couple Amidst Coronavirus

 

Disparities in Breast Cancer Care for Women of Color

 

 

How Do Women of Color With Breast Cancer Cope Now?

Women of color who are diagnosed with breast cancer have poorer access to appropriate care and higher mortality. Now there are many additional challenges because of the effects of the coronavirus pandemic. What are some tips, resources and solutions to help? Two inspiring women who are passionate in their commitment and "in the know," including Maimah Karmo from The TigerLily Foundation and Angela Baker, founder and President of Angel in Disguise, Inc. joined us to offer helpful advice.

Part 1: Disparities in Breast Cancer Care for Women of Color Part 2: Women of Color With Breast Cancer Advocate for Change

 

Update on Coronavirus Issues for Myeloma Patients

 

Update on Coronavirus Issues for Multiple Myeloma Patients

Two leading myeloma experts: Dr. Noopur Raje (Mass General) and Dr. Faith Davies (NYU), joined us for another live question-and-answer discussion about issues of concern to myeloma patients and their loved ones. 

Update on Coronavirus Issues for Multiple Myeloma Patients

 

Dealing With Cancer Financial Worries Due to Coronavirus v2

 

 

 

Dealing With Cancer Financial Worries Due to Coronavirus

Navigating the costs of cancer care can be daunting enough without the added concerns that come with a pandemic that impacts employment, insurance, and many other critical financial factors. Two leading financial guidance and support experts, Dan Sherman - Financial Navigator, The Navectis Group and Ayesha Azam - Patient Access Network Foundation joined us to discuss ways to help get through the complexities of healthcare in the time of coronavirus and share tips and resources.

This program is sponsored by Incyte, Janssen and Pharmacyclics. These organizations have no editorial control, and Patient Power is solely responsible for program content.
 
Dealing With Cancer Financial Worries Due to Coronavirus

 

Putting Blood Virus and Antibody Tests for Cancer Treatment in Perspective

 

Cancer Blood Work Tests and Coronavirus

Is your ability to get a monitoring blood test on your regular schedule disrupted? If so, is that a big deal? Would you be able to get a coronavirus or antibody test?  How reliable would they be for you to make sound decisions? Two noted laboratory science experts, Susan Leclair, PhD and Jim Griffith, PhD, took audience questions about blood testing and infection surveillance. 

Although this is a sponsored program, Patient Power maintains editorial control and is solely responsible for the content of this program.
 
Cancer Blood Work Tests and Coronavirus

 

Coping with Cancer and Coronavirus Anxiety

 

Coping With Cancer and Coronavirus Anxiety

Being a cancer patient/survivor has its own set of worries and ongoing concerns about our current health and future wellness. This pandemic only heightens that anxiety. What can you do to help lessen anxiety and deal with the added stress of the current COVID-19 situation? Join us as two specialists: Eucharia Borden, MSW, LCSW, OSW-C - Senior Director, Clinical Services, Cancer Support Community and Jennifer Abraham (Zarou), LCSW, MSW, family therapist and patient advocate, discuss ways we can reduce and control the impact of this stressful time.

Coping with Cancer and Coronavirus Anxiety

 

How Can Telemedicine Help You Now

How Can Telemedicine Help You Now?

Are you scared to go to your doctor now? Can they "come to you" on the phone or online? Yes! But how does this work and give you confidence. Leading hematologist/oncologist Dr. Mike Thompson (Vince Lombardi Cancer Clinic, Aurora Health Care) discussed how telemedicine is being used in the time of the coronavirus crisis.

How Can Telemedicine Help You Now

 

Coronavirus Separating Fact From Fiction for CLL Patients

 

 

 

Coronavirus: Separating Fact From Fiction for CLL Patients

Can cancer medicines be used to treat COVID-19? Does the effect of the virus vary by CLL subtype? Is ibrutinib (Imbruvica) being mixed with Coca-Cola? Watch to hear expert perspectives on questions like these and more.

With much misinformation circulating online, Dr. Wierda, Professor and Medical Director for the Department of Leukemia at MD Anderson Cancer Center and Dr. Kerry Rogers, from The James Comprehensive Cancer Center at OSU, joined Patient Power to help chronic lymphocytic leukemia patients separate fact from fiction and explain how care is being modified during the pandemic.

Coronavirus: Separating Fact From Fiction for CLL Patients

 

Coronavirus and MPN Internet Myths Whats True or False and What Dont We Know

 

Coronavirus and MPN Internet Myths

MPN expert Dr. Laura Michaelis, Associate Professor Hematology/Oncology at the Medical College of Wisconsin, and Dr. Joseph ScanduraPhysician Scientist and Associate Professor of Medicine, Scientific Director of the Richard T. Silver, M.D. Myeloproliferative Neoplasms Center; Weill Cornell Medicine, joined us to discuss myths and truths about the impact of the coronavirus on MPN patients.

Coronavirus and MPN Internet Myths

 

Melanoma Concerns Am I at Risk During the Coronavirus Crisis

 

 

Melanoma Concerns: Am I at Risk During the Coronavirus Crisis?

Melanoma specialist Dr. Sapna Patel, Associate Professor, Department of Melanoma Medical Oncology at MD Anderson, and Shelby Moneer, MS, CHES Education Director from the Melanoma Research Foundation, joined us as they help us sort through issues and concerns melanoma patients have during the coronavirus crisis. Please send questions in advance to comments@patientpower.info

Melanoma Concerns: Am I at Risk During the Coronavirus Crisis?

 

What Should Acute Leukemia Patients Know About the Coronavirus

 

What Should Acute Leukemia Patients Know About the Coronavirus?

Two leading experts from MD Anderson, Houston - Dr. Tapan Kadia and Dr. Naval Daver - joined us to discuss the issues and concerns patients and loved ones dealing with acute types of leukemia might have in the current coronavirus crisis.

What Should Acute Leukemia Patients Know About the Coronavirus?

 

Lung Cancer Trials in the Time of the Coronavirus Crisis

Lung Cancer Trials in the Time of the Coronavirus Crisis

Expert Dr. Sandip Patel (UCSD) joined us to discuss clinical trials for lung cancer patients and what impact the coronavirus may have on these important research programs.

Lung Cancer Trials in the Time of the Coronavirus Crisis

 

Coronavirus CLL Ask the Expert v2

How Will the Coronavirus Affect CLL Treatment?

Dr. Nicole Lamanna (Associate Clinical Professor of Medicine, Columbia University Medical Center) joined us for our second live CLL Ask the Expert program to discuss issues and concerns related to the coronavirus.

How Will the Coronavirus Affect CLL Treatment?

 

Coronavirus CML Ask the Expert LIVE

CML Expert Discusses How to Protect Yourself From Coronavirus 

CML specialist Dr. Michael Mauro (Memorial Sloan Kettering Cancer Center) joined us to issues and concerns about the coronavirus.

CML Expert Discusses How to Protect Yourself From Coronavirus

 

Coronavirus Myeloma Ask the Expert

Are Myeloma Treatment Plans Changing During Coronavirus?

Dr. Robert Orlowski, Director of Myeloma at MD Anderson, Houston joined us to discuss issues and concerns about the coronavirus as it may impact myeloma patients and survivors.

Are Myeloma Treatment Plans Changing During Coronavirus?

 

Coronavirus Lymphoma Ask the Expert event

Navigating Lymphoma Care During COVID-19

Dr. Joshua Brody, from Mount Sinai Health System, joined us to address issues and concerns of lymphoma patients and care partners related to the impact of the coronavirus. 

Navigating Lymphoma Care During COVID-19

 

Coronavirus Prostate Cancer Ask the Expert

Coronavirus Precautions for Prostate Cancer Patients

Prostate cancer expert Dr. Eleni Efstathiou, from MD Anderson Cancer Center, joined us to discuss questions and concerns about the coronavirus impact on prostate cancer patients. 

Coronavirus Precautions for Prostate Cancer Patients

 

Coronavirus Lung Cancer Ask the Expert

Coronavirus and What Do Lung Cancer Patients Need to Know

Lung cancer expert Dr. Ross Camidge from the University of Colorado Cancer Center joined us to answer questions about the issues and concerns lung cancer patients and their loved ones have about the coronavirus. 

Coronavirus and What Do Lung Cancer Patients Need to Know

 

Coronavirus MPN Ask the Expert

What Are the COVID-19 Risks for MPN Patients?

MPN experts Dr. Ruben Mesa and Dr Robyn Scherber joined us to discuss issues and concerns arising from the coronavirus pandemic specifically for MPN patients.

What Are the COVID-19 Risks for MPN Patients?

 

COVID 19 Outbreak Breast Cancer Coronavirus Questions Answered

COVID-19 Outbreak: Breast Cancer Coronavirus Questions Answered

Breast cancer expert Dr. Julie Gralow, from the University of Washington and Seattle Cancer Care Alliance, joined us to discuss issues and concerns that could impact breast cancer patients during this pandemic.

COVID-19 Outbreak: Breast Cancer Coronavirus Questions Answered

 

Coronavirus MPN Ask the Expert

MPNs and Coronavirus: Expert Advice for Patients

Are MPN patients at higher risk for complications? Should we be tested earlier? Do we have to worry about receiving refills of our medicines, are supplies disrupted? We’ll tackle these questions and more with Dr. Naveen Pemmaraju, MD from MD Anderson Cancer Center. 

MPNs and Coronavirus: Expert Advice for Patients

 

Families Coping With the Coronavirus Health Crisis

 

Families Coping With the Coronavirus Health Crisis

Jennifer Abraham is a licensed family therapist, a high-risk CLL patient and a single mom with two teenager daughters. With young people at home and the stress of her own cancer worries, how is she coping, and what advice does she have for you? She welcomes your questions and your own tips we can share!

Families Coping With the Coronavirus Health Crisis

 

Your Questions Expert Answers Managing Myeloma During the Coronavirus Outbreak

Your Questions, Expert Answers: Managing Myeloma During the Coronavirus Outbreak

If you are receiving infusions of myeloma medicines, is coming to the clinic risky? Should a treatment plan be changed? Do the medicines diminish immunity? Two experts took questions: Nina Shah, MS, UC San Francisco, and Larry Anderson, MD, UT Southwestern Medical Center in Dallas.

Your Questions, Expert Answers: Managing Myeloma During the Coronavirus Outbreak

 

How Can CLL Patients Minimize Their Risk of Exposure to Coronavirus

How Can CLL Patients Minimize Their Risk of Exposure to Coronavirus?

Rather than CLL being the “good” cancer to have, are CLL patients especially at higher risk for serious complications from coronavirus? If so, what should we do? Guests included two CLL specialists: Justin Taylor, MD, Memorial Sloan-Kettering in New York City, and Farrukh Awan, MD, UT Southwestern Medical Center in Dallas. 

How Can CLL Patients Minimize Their Risk of Exposure to Coronavirus?

 

 

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