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My Thoughts and Feelings During Coronavirus

My Thoughts and Feelings During Coronavirus
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Published on April 30, 2020

As I write this, we have produced—in just a few weeks—about 20 live “Ask the Expert” webinars for people living with specific cancers. I am living with two: chronic lymphocytic leukemia and myelofibrosis. Our goal has been to fill in the blanks for cancer patients on what the general media isn’t covering—specifics of issues per cancer as we all worry about how the coronavirus may or does affect us.

As we have proceeded, we’ve heard from many renowned medical experts from coast to coast who have volunteered to be guests on our programs, sometimes during a break from treating patients in wards, as in New York City. Each time, we have told them they are our “angels” for their dedication to us and to the Patient Power community.

Patients have sent in hundreds of questions. Some can be answered, some answers are unknown just yet. We are committed to producing ongoing programs as these questions and answers evolve and emerge.

Of course, topics can transcend single cancer types. Some issues relate to all of us, like financial issues. What if you have lost your job? How do you afford your meds? Or how do you cope with the added anxiety of uncertainty about your care or your risks on top of your worry about your cancer? We are covering all of it, and I am living with it myself. 

Patient Power is patient-driven. We patients are the only ones pushing this discussion forward. There is nobody else doing it. Thankfully, leading medical experts are happy to join us in a dialogue and they respect us, as the ones who are living with the health concern. Our guests from the medical profession are exemplary.

Lately, some of the companies that manufacture the medicines that we take have been offering to support our efforts, while exerting no control over what we say, do or the topics we pick. I appreciate them lining up to support our communities. It’s the right thing to do.

Thanks for participating in any of our programs. Please sign up for our e-newsletters, so we can keep you informed. We plan to do a lot more and always welcome your ongoing participation in future programs, as well as your feedback at comments@patientpower.info. 

Here’s wishing you and your family the best of health!

~Andrew Schorr


Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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