Staying Grounded in the Midst of Financial Uncertainty

Published on

Topics include: Understanding , Exercise and Fitness , Diet and Nutrition and Emotional Well-Being

What are the different financial factors in play for some myeloma patients? Andrew Schorr and social worker Robin Katz discuss how the flux of insurance, disability, patient assistance programs and pharmaceutical assistance programs can cause financial uncertainty for some patients. Watch for Robin’s opinion on the top myeloma financial resources.

The Living Well with Myeloma series is a Patient Empowerment Network Program produced by Patient Power. We thank Celgene, Takeda, Amgen and AbbVie for their support.

View more programs featuring and

Produced in association with

Transcript

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you. 

Andrew Schorr:

There’s a lot of financial uncertainty, right now, in America, if that’s where you are. Folks from other countries may actually have more stability. But, we wonder what’s gonna happen with the insurance we may have, if we’re on the patient assistance program, will there be any funds that will continue? 

Lots of uncertainty. So, Robin, just while we talk about that, we’ve got the worry of the illness, we’ve got the worry of the relationships, and we worry about financial health. That’s a lot.

Robin Katz:        

It’s a lot to worry about, and a lot of people can’t work. So, you know, they’re concerned about whether or not they’re gonna get disability, if they are able to get disability. Unfortunately, the healthcare system is in flux right now. We know pretty much nothing about what’s gonna be available during open enrollment, for patients who are purchasing plans. And then, one of our biggest supporters, The Leukemia & Lymphoma Society (LLS), just closed the Multiple Myeloma Fund, so that’s a big blow. So, we try and take it day by day. I’m sure many hospitals, like Northwestern, have financial assistance programs, but they’re income tested. So, we try to get pharmaceutical companies to help pay for some of the medications that are really costly.

And, we’re just kind of waiting day by day, to see what happens in November, when open enrollments happen.  But it’s a very anxiety-provoking time right now, for a lot of patients, because this insurance is so in flux.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you. 

Advertisement
Join Our Community Register for Events Read Our Latest Blog
Advertisement

Page last updated on December 21, 2017