Published on January 17, 2020
When facing a cancer diagnosis, many patients find that connecting with others who can relate is a critical part of navigating this unfamiliar territory. When that diagnosis is for a rare disease like Waldenstrom, however, with only 1,500 new patients being diagnosed each year in the United States, finding a support network may prove to be a challenge. That’s where the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) comes in.
The mission of the IWMF is to “support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) while advancing the search for a cure.” Based in Sarasota, Florida, the IWMF is a worldwide organization offering:
- Information for newly diagnosed patients
- A list of physicians with experience treating Waldenstrom
- More than 60 support groups around the world
- An e-newsletter providing important news and updates
- Educational materials and other publications
- Support for caregivers
- And much more!
The IWMF’s largest annual event is their educational forum, with the 25th annual forum being held this year near Seattle, WA:
IWMF Educational Forum
June 5-7, 2020
Hyatt Regency Lake Washington
1053 Lake Washington Blvd N, Renton, WA 98056
A cancer diagnosis may be scary, especially when it’s for a lesser-known cancer like Waldenstrom, but patients and their loved ones don’t have to face this diagnosis alone. For more information about the IWMF, visit www.iwmf.com. To sign up for Patient Power’s Waldenstrom newsletter (coming soon!), click here.
Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.