Published on January 17, 2020
When facing a cancer diagnosis, many patients find that connecting with others who can relate is a critical part of navigating this unfamiliar territory. When that diagnosis is for a rare disease like Waldenstrom, however, with only 1,500 new patients being diagnosed each year in the United States, finding a support network may prove to be a challenge. That’s where the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) comes in.
The mission of the IWMF is to “support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) while advancing the search for a cure.” Based in Sarasota, Florida, the IWMF is a worldwide organization offering:
- Information for newly diagnosed patients
- A list of physicians with experience treating Waldenstrom
- More than 60 support groups around the world
- An e-newsletter providing important news and updates
- Educational materials and other publications
- Support for caregivers
- And much more!
A cancer diagnosis may be scary, especially when it’s for a lesser-known cancer like Waldenstrom, but patients and their loved ones don’t have to face this diagnosis alone. For more information about the IWMF, visit www.iwmf.com. To sign up for Patient Power’s Waldenstrom newsletter, click here.
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