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International Waldenstrom’s Macroglobulinemia Foundation

International Waldenstrom’s Macroglobulinemia Foundation

Published on January 17, 2020

When facing a cancer diagnosis, many patients find that connecting with others who can relate is a critical part of navigating this unfamiliar territory. When that diagnosis is for a rare disease like Waldenstrom, however, with only 1,500 new patients being diagnosed each year in the United States, finding a support network may prove to be a challenge. That’s where the International Waldenstrom’s Macroglobulinemia Foundation (IWMF) comes in. 

The mission of the IWMF is to “support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) while advancing the search for a cure.” Based in Sarasota, Florida, the IWMF is a worldwide organization offering:

The IWMF’s largest annual event is their educational forum, with the 25th annual forum being held online this year:

IWMF Virtual Educational Forum
August 27-28, 2020
View the agenda.
Click here to register.

A cancer diagnosis may be scary, especially when it’s for a lesser-known cancer like Waldenstrom, but patients and their loved ones don’t have to face this diagnosis alone. For more information about the IWMF, visit To sign up for Patient Power’s Waldenstrom newsletter, click here

~Suzanne Mooney

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.